Jaw Surgery Forums » Share Your Jaw Surgery Experience!

1 Month Post MMA (w/ Blog!)

(3 posts)
  1. sarahm
    Member

    Hi all -- I'm 4 weeks out from my maxillomandibular advancement surgery to treat severe sleep apnea. Reading people's blogs and forum posts here was SO much help to me both before and after surgery, so I thought I'd add to the communal story by sharing my own experience.

    My story is here: http://sleepreboot.blogspot.com

    I am doing VERY well. I think I got pretty lucky as far as my recovery went - my nurses were all impressed by how little bruising/swelling I had. I am already feeling more energetic despite having been through major surgery and subsisting on liquids for the last month!

    Some more info about me, in case you're looking for someone in your demographic to compare your experiences with:

    I'm a 28-year-old female of normal weight. I've struggled with fatigue, anxiety, and depression (not to mention and open bite) since I was 16. I was finally diagnosed with severe sleep apnea at 26, failed miserably at making CPAP work, had braces put on in July last year and then had MMA surgery with Dr. Li (I HIGHLY recommend him!!!) on Aug 30th, 2011 at Stanford University Hospital (ALSO highly recommend Stanford Hospital!)

    Anyway, THANK YOU ALL SO MUCH for all your thoughts and experiences.

    Posted 7 months ago #
  2. OpenBite
    Member

    Hi Sarahm. It's always good to hear someone is doing well after surgery, specially in my case that I0m going to have surgerry this year :)

    I've been having a look at your blog. I think that everyone who come here to talk about their experience or write a blog, youtube videos, etc very helpful.

    How do you feel now? Do you sleep better? I have an open bite, I've never been able to sleep well, and sometimes I wake up suddenly feeling the need breathe very deep; it's strange, sometimes I've thought I could suffer sleep apnea. I'm having bi-jaw surgery done to fix my open bite.

    Did you have something special done, or just the jaw movement to improve the airway?

    Posted 7 months ago #
  3. sarahm
    Member

    Hi there,

    It took me a really long time to put two and two together as far as my open bite and my constant fatigue are concerned. I had braces for a little over a year when I was 14 and my bite was closed until about 6 months after I had my braces off. I later had braces AGAIN when I was 19, along with W-Wire expander which was VERY uncomfortable and gave me an awful lisp. It didn't seem to be expanding my palate or fix my bite, so I gave up on that at about month 6 and figured it wasn't THAT big a deal that I couldn't bit through things with my front teeth anymore. I'd already lived with it for 4 years.

    As far as being tired, which I began struggling with at around 16, I think - I was originally diagnosed with Grave's Disease. I had a (very!) mildly overactive thyroid and was put on medication for that. It got my hormone levels in the right range, but didn't do a whole lot for my fatigue. I felt about the same as always.

    Later I treated my anxiety and depression with SSRIs, which certainly helped my mood... but again, I was still tired all the time.

    Finally, a couple years ago I came down with bronchitis and my breathing became very bad. I was put on prednisone (a steroid) for quite some time. I felt GREAT. Even though I was sick, my attention span was fantastic, my motivation was up, and I felt positive in a way I hadn't felt in years. It finally occurred to me that that was how I used to feel most of the time.

    My GP happened to suffer from sleep apnea himself, so when we discussed all the possible reasons for my continued struggle and came to a dead end, he sent me for a sleep study.

    It hadn't even OCCURRED to me I might have sleep apnea. I never realized I woke up in the night. I had some weird nighttime behaviors (acting out stress dreams, shouting what I was yelling in my dream) and was ALWAYS ready for a nap, but I just never became conscious enough in the night to realize how restless I was.

    Anyway, when I started researching sleep apnea, I found out that people with open bites often have constricted airways. On top of that, my nose was very narrow and with a very slightly deviated septum. I hadn't realized until about four people asked me that I was a mouth breather. I kept saying no - but when I started paying attention, I realized it was actually pretty difficult for me to breathe full time through my nose.

    Moving the jaw forward actually widened my nose a bit and now I can BREATHE. Besides the jaw surgery (upper 6mm and lower 11mm), my surgeon also did some septum work. It's taken me awhile post surgery to find a good circadian rhythm (a lot of disruptions at first with medication and discomfort), but even so I definitely already feel an improvement in my energy levels, concentration, and motivation.

    Anyway, I'd definitely recommend doing a sleep study if you haven't already. If your surgeon knows you have sleeping difficulties, they may do the surgery somewhat differently than if it is just to fix an open bite.

    Good luck with your surgery!

    Posted 7 months ago #

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