Jaw Surgery Forums » Pre-Surgery Questions

Some advice for carers- first few days post surgery

(16 posts)
  1. kscott
    Member

    Hi there, my name is Audrey and I'm Kellie's mum. I just wanted to share some things with you as your child/partner/relative/friend goes through jaw surgery.
    Our experience might not be the same as yours but I think it will be similar enough to be relevent.

    Firstly Kellie had her surgery for bimaxillory osteotomy genioplasty. In laymans terms thats both jaws and a shiny new chin.
    She had her op on August 30th so today we are day 12. She will be fully banded for 6 weeks.

    Surgery day was quite traumatic for me (sure kel wasnt having a blast either). She didnt go down to theatre til 12.30pm and she came out at 8.30pm. I eventually got to see her around 10.00pm and I have to say seeing her was a mixture of relief and upset. She was understandibly very woozy from the anesthetic and very panicky about breathing as her jaws were banded shut! She kept writing down why had she had this done, OMG i can't believe I've done this. I gave her lots of hugs and reasurance and when I left her I cried all the way home!

    She came home 2 days later and I think we both felt better to be together.
    Whome ever you are going to be looking after I would urge you to take at least the first week off work and be with them 24-7.
    The first 7 days are tough. I dont think it matters if you're 17 or 27, they need lots of support.
    We both make the living room our base and the sofa our bed. Kellie at one end and me at the other. She was proped up with pillows and cushions. They will need to be upright as it helps to breath and helps with the swelling.

    There were lots of hand holding in the small hours and talking her through difficult 5 minutes of thinking she couldnt breath. We got through it and you will to.
    We got a large fan whirring in the night which psycologically helped as she 'felt' like she wasnt getting enough air and the fan blowing on her gave her the feeling that there was more air in the room. Also a friend who's daughter had gone through this surgery 3 years ago ago said was in invest in McDonalds straws! Sounds crazy but it really helped Kellie. She would push a straw up to the back of her mouth and breathe in and out of it. In those small hours Kellie couldnt hear herself breathe and would ask me (well write to me) 'can you hear me breathing'? This is where the straw helped and she could hear herself breathing through the straw and it sounded like she was scuba diving which was a great tonic for helping her to get to sleep! By the way McDonalds have the best straws as they are quite rigid and best of all are free!
    Hey, whatever gets you through!!

    I wrote down every time she took her meds. There were lots of meds in the first week (painkillers, antibiotics etc) and it's impossible to remember what you've given and when. Write it down!

    There's nothing like a bath and having your hair washed! Even you guys ;)
    It makes everyone feel better!

    Posted 8 months ago #
  2. kscott
    Member

    Dont underestimate how much rest they will need and make sure you get some sleep when you can.
    During those first 7 days Kellie lost 15lbs. I would say that getting her to eat (well, drink) was difficult. She was so swollen internally that getting any fluids, even water some days was a struggle. I just kept thinking about what her surgeon had told me. He said that not eating for a week wouldnt hurt as long as she was drinking. She just kept sipping and sipping and she got through it. It was a difficult mix between not having any food in her tummy and feeling hungry and lots of painkillers on an empty stomach. She did feel nauseas during this time but than God she didn't vomit.

    By day 6, she turned a bit of a corner. She felt better generally. The swelling had reached a point where it wasnt getting any worse and the bruising had come out, although she has been less bruised that we thought.
    She had been able to get some of the shakes down and her stomach was settling.
    I actually slept in my bed by day 8! Kellie stayed down stairs still propped up but confident about coping the night alone but knowing i was a call away ( by call I mean phone call!)

    Today (day 12) she is sitting up knitting!
    Feeling 100% better than she did. We are trying hard to focus on the days she has gone through and not to think about the many more ahead. Each day at a time.
    We are focusing on her diminishing waist line and the fact that she has a shiny new face to look at. A new hair cut and colour is next!
    Her surgeon is thrilled with her. He almost does a happy dance evey time he sees her! Her mouth is clean and healing well and he says she will be so happy with her new profile.

    Good luck to all of you during those first few days, we've made if through and you will to!
    Bring a big bag of patience with you, lots of deep breathing and cuddles.

    Posted 8 months ago #
  3. RachelM
    Member

    It sounds like Kellie had a really rough time with her breathing and it was a very different experience to mine in terms of the support I needed after double jaw surgery.

    I went in for surgery at 8.30am Wednesday and didn't have any visitors (my Mum) until 6pm Thursday. I was fine looking after myself and had a tube up my nose to help me breath.
    I had two nights in hospital and my Mum picked me up and drove me home on the Friday. I slept in my own bed from day one with lots of pillows stacked up so I was upright. My sleeping patterns for the first week were more or less 20 minutes at a time. I never had any problems breathing at night so was lucky as I know it can be a problem for some people.

    I had made all my own food prior to going in for my surgery and just had to defrost it each day. I lost 16lbs in the first 2 weeks but slowly put it all back on again over the following six weeks. I was able to manage my meds fine and I wasn't in any pain. Just uncomfortable.

    The only help I really needed was to be driven to my first outpatient appointment a week after surgery as I was still pretty sleepy. If you asked my Mum she would just tell you I looked after myself really but I know I had a pretty smooth ride post op and it's different for everyone. Just wanted anyone reading to know that recovery is different for everyone and everyone will need different support.

    Sounds like you've been a great support Audrey. I hope Kellie takes you out for a nice steak once she's able to chew again!

    Posted 8 months ago #
  4. kscott
    Member

    Hi Rachel
    I absolutely don't want to scare anyone and I appreciate every ones experience will be different. I just wish I had a)found this website before her operation and b)some one had warned me about how tough it might be!

    Thank you to all of you who replied to her messages in those early days, she's doing great and no matter what your experience you WILL be ok x

    Posted 8 months ago #
  5. RachelM
    Member

    I completely agree. The thing I've found from this forum is that everyone's experience is completely different. Jaw surgery seems as much of an art as it is a science! I think it's always good to be prepared for the worst so you can usually be pleasantly suprised (as I was) about how smooth the recovery can be. However, if you end up like poor Kellie then at least your story can prepare you in some way for what's ahead!

    Posted 8 months ago #
  6. jayneylane
    Member

    This is a really helpful post and I am glad that Kellie is recovering well. My Fiance is going to take the first week off to look after me, and then my mum the next (she will come and stay with me during the day while my Fiance is at work) and then after that I think I should be able to take care of myself! I also have my best friend only living two doors away so I'm sure she will keep me company if I need it (6 weeks off work with a wired-shut jaw is not going to be fun I'm sure....!).

    Thanks again for this post, I showed it to my Fiance and I think it helps preparing him for what to expect.

    Posted 8 months ago #
  7. Euphobia
    Moderator

    Good to hear she's doing well.

    My mum underestimated how I'd be after the surgery as well. She came to the pre-op appointment with me and knew what the operation consisted of, but didn't realise how hard it is during recovery.

    Posted 8 months ago #
  8. kscott
    Member

    Thought I would give this a bump as we have quite a few people getting close to surgery, I hope it helps :)

    Posted 7 months ago #
  9. Abbil
    Member

    Thanks. But no!!!! I just cried my eyes out while reading that!! How am I going to do this on my own?!!!!

    Posted 7 months ago #
  10. RachelM
    Member

    You'll be fine Abbil, trust me xx

    Posted 7 months ago #

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